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SHORT STATURE
SYMPOSIUM VII

Sponsored by
Division of Medical Genetics
Johns Hopkins University School of Medicine
Baltimore, Maryland

FRIDAY, JUNE 16, 1978
MEDICAL GENETICS CLINIC
IN
THE MOORE CLINIC
JOHNS HOPKINS HOSPITAL

SATURDAY, JUNE 17, 1978
WORKSHOPS
IN
THE TURNER AUDITORIUM

 

PARTICIPANTS

Sponsors:

Edmond A. Murphy, M.D.

Victor A. McKusick, M.D.

Consultants: Little People of America

Human Growth Foundation

Arrangements Committee:

Joan O. Weiss and Elizabeth Elder, Chairpersons
Margaret H. Abbott, Clinic Coordinator

Christine Laspia
Barbara J. Latrobe
Jill Shuger

Kathryn «. Smith, Consultant

Clinic Participants

Victor A. McKusick, M.D.
Edmond A. Murphy, M.D.

Margaret H. Abbott,
R.N., M.P.H.

Daniel Camerini, M.D.

Brian Conway, M.D.

Jurien Dean, M.D.

John P, Dorst, M.D.

Barbara Fairfield

Susan Folstein, M.D.

Madeline Harbison, M.D.

John Heckenlively, M.D.

David Hungerford, M.D.

Haig Kazazean, M.D.

Thaddaus Kelly, M.O.

Nell Kirby, R.N.

Steven Kopits, M.D.

Ernest Kopstein, M.D.

Zuhair Kureem

Claire Leonard, M.D.

Speakers:

Charles Brown
Jean Fairbairn
Kevin McGowan
Ellen Oppenheim
Lyn Park

tL. Stefan Levin, D.D.S.
Irene H. Maumenee, M.D.
Mary O’Donnell, P.T.
Shashedhar Pai, M.D.

John Philips, M.D.
Alejandro Rodriquez, M.D.
Kenneth Rosenbaum, M.D.
Leon Rosenberg, Ph. D.
George Sack, Jr., M.D.
Arthur Siebens, M.D.

Beat Steinmann, M.D.
Michael Sussman, M.D.
Vernon Tolo, M.D.

George Udvarhelyi, M.O.
David Valle, M.D.

Jewel Ward, M.D.

Eckart Wunder, M.D.
Michael Zasloff, M.D.

Ann Harica, R.T.

Robert Goe

BALTIMORE BELTWAY S95

FRIDAY, JUNE 16

8:30 a.m. Medica! Genetics, Clinic —

Johns Hopkins Hospital — by appointment
The Moore Clinic (Carnegie, 2nd ftoor)

Magic Show for Children

By Mark Walker
Lower level, Sheraton-Hopkins Inn

8:00 p.m.

8 to 11 p.m. Party for Everyone

Lower level, Sheraton-Hopkins Inn

SATURDAY, JUNE 17

LOCATION: Turner Auditorium — Take elevator
on first floor of CMSC Bidg. down to B2 and
follow signs through tunnel to Turner Auditorium.

Workshops, Speakers, and Social Hour

 

8:30 a.m. Registration (Turner Auditorium)
9:00 am. Welcome — Dr. Edmond A. Murphy
9:05 a.m. Current Research — Dr. Victor A.
McKusick
9:10 a.m. LPA — William Miller
89:15 a.m. HGF — Joyce Wolfe
9:20 a.m. Results of Questionnaires —
Dr. Susan Folstein, Joan Weiss, L.C.S.W.
9:25 a.m. Days Activities — Gerald Rasa
9:30 a.m. Coffee Break — Group Picture
10:00 a.m. MORNING WORKSHOPS
12:00 p.m. LUNCH (Turner Lobby)
1:00 p.m. SPEAKERS (Turner Auditorium)
4:30 p.m. AFTERNOON WORKSHOPS
3:30 p.m. Social Hour (Moore Clinic) —

Carnegie, 2nd floor

 
            
 

1. — HOSPITAL

U.$.40
BROADWAY

 
GENERAL INFORMATION

Short Stature Symposium VII is for
persons of short stature, their
parents and their brothers and
sisters. Children attending the
symposium must be 10 years or
older; parents of younger children
are urged to attend (See
Registration Form for Babysitting
info).

Hotel Registration at the Sheraton —
Johns Hopkins Inn should be
made individually prior to June 1,
1978 to obtain Discount Rate
(two in room: $28, one $22).
Children under 18 free in room
with parents. Short Stature
Symposium must be mentioned.
The Inn will offer a buffet
dinner in their dining room ($5.95
per person Friday evening before
the party.

Sheraton - Johns Hopkins Inn
Broadway & Orleans Sts.
Baltimore, Md. 21205

(301) 675-6800

Registration Fee for Saturday June 17:

$10.00 per individual
$ 5.00 per child after first two

Workshop registration fee includes —
lunch, coffee break, work-
shops and social hour (No
refunds).

10.

11.

SCHEDULE

MORNING WORKSHOPS

Clothing Needs*

Dr. Alejandro Rodriquez

a. For Him — Esther Treyliner, Tina Baehm

b. For Her -- Margaret Badner, Christine
Hager

Parents of Pre-School Children

 

Dr. Michael Zasloff
Louise Odell, L.C.S.W.

Dental Problems*
Dr. L, Stefan Levin

Parents of Junior High School Children

 

Dr. Leon Rosenberg
Mary Perry, M.A.
Beth Wason

Parents of High Schoo! Children

 

Dr. Peter Pompilo
Patricia Pompilo, B.A.

Nutritional Needs of Teenagers and Adults

 

Millicent Kelly, R.D.

Little Parents of Average Sized Children*

 

Ginny Corson, M.S.
Susan Mewborn, L.C.S.W.

Teenagers

Dr. Mohammad Maisami
Gina Zingaro

Young Adults*

Or. David Valle
Lesiye Sneider
Harrell Parker

Children — 19 t#12 years (sign up also for

No. 20 afternoon workshop)
Jeri Lodato, B.A., Linda Cappock, B.A.

Genetic and Endoctrine Concerns

Dr. Victor A. McKusick, Dr, Edmond A.
Murphy, Or. Leslie Plotnick, Dr. Peter Lee,
Dorothy Harris, L.C.S.W.

 

*New This Year

12.

13.

14.

15.

16.

17.

18.

19.

20.

21.

22.

23.

AFTERNOON WORKSHOPS

Assertiveness Training *

Dr. James Dasinger
Ernest Ott, John and Jean Cressman

Your Child and Sex Education +

 

Richard Clopper, M.A.
June Werlwas, M.M.H.
Barbara Morris

Children’s Orthopedic Problems

 

Dr. Steven Kopits
Diane Davis, P.N.P.

How to Get a Job

Francine Mittelman, M.A.
George Baehm

Parents of Elementary School Children:

 

Communication Skills

Or. Kenneth Rosenbaum
Shirley Skoier, L.C.S.W.
Joyce Engstrom

Average Sized Brothers and Sisters

 

Dr. Reed Pyreritz
Patricia Thompson, L.C.S.W.

Coping Skills For Parents of Average
Statured and Short Statured Children*®

 

 

Dr. George Sack
Sallie Voreacos, L.C.S.W.
Charlotte Fury

Parents of Short Statured Children
Up to Two Years

 

Dr. Madeleine Harbison
Dr. Betty Adelson

Children — 10 to 12 Years

(Continuation of a.m. workshop No. 10)
Jeri Lodato, B.A., Linda Coppock, B.A.

Human Sexuality and Related Topics

 

(For short statured persons ages 16 and over)
Dr. Jay Nolan
Jean Fairbairn

Nutritional Needs of Younger Children

 

Millicent Kelly, R.D.
Rehabilitative Medicine

Practical approach to self care
Back problems in achondroplasia
(Please bring practical aids and send in

particular problem areas with registration form).

Dr. Arthur Siebens, Dr. David Hungerford,
Nell Kirby, R.N., Mary O’Donnell, P.T.

REGISTRATION FORM

 

 

 

*Workshop Choice

 

 

 

Relationship

Type of Short Stature

Age

Name

 

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Group picture desired (add $2.00 to registration per picture)

PLEASE TEAR OFF AND MAIL WITH CHECK BY MAY 15 TO:

Joan O. Weiss, L.C.S.W., The Moore Clinic, Johns Hopkins Hospital, Baltimore, Md. 21205