Understanding the impacts of OS-PCORTF projects on data capacity: an interim qualitative assessment
Understanding the impacts of OS-PCORTF projects on data capacity: an interim qualitative assessment
- Collection:
- Health Policy and Services Research
- Author(s):
- Evans, Emily, (Of Office of the Assistant Secretary for Planning and Evaluation), author
Srinivasan, Mithuna, author
Correa, Kiran, author
Ryan, Sofia, author
Harmsen, Mikaela, author
Lumsden, Susan, author
Dullabh, Prashila, author - Contributor(s):
- United States. Department of Health and Human Services. Office of the Assistant Secretary for Planning and Evaluation, issuing body.
NORC (Organization), issuing body.
Patient-Centered Outomes Research Institute (U.S.). Patient Centered Outcomes Research Institute Trust Fund. - Publication:
- Washington, D.C. : Department of Health and Human Services, Office of the Assistant Secretary for Planning and Evaluation ; [Chicago, Illinois] : NORC, September 2023
- Language(s):
- English
- Format:
- Text
- Subject(s):
- Data Collection
Evidence-Based Medicine
Patient-Centered Care
Qualitative Research
United States - Genre(s):
- Technical Report
- Abstract:
- Patient-centered outcomes research (PCOR) aims to generate evidence about the outcomes and effectiveness of treatments, services, and other health care interventions to support informed decisions by patients, caregivers, clinicians, and policymakers. Robust data capacity and infrastructure are integral to this evidence generation; conducting PCOR studies requires timely access to relevant, high-quality data that can be analyzed with rigorous and appropriate research methods. Within the U.S. Department of Health and Human Services (HHS), the Office of the Secretary Patient-Centered Outcomes Research Trust Fund (OS-PCORTF) works to address these critical data needs, funding a portfolio of projects that improve the capacity for collection, linkage, and analysis of data for patient-centered outcomes research. To measure progress in advancing data capacity for PCOR studies, and ensure its efforts remain responsive to evolving data infrastructure needs, priorities, and other relevant developments, the OS-PCORTF conducts regular assessments of its portfolio. This report presents findings from an interim qualitative assessment that examined the ways in which a selected set of OS-PCORTF projects collectively advanced the ability of researchers to conduct PCOR studies by (1) improving the quality of data; (2) providing more relevant, comprehensive data; (3) enhancing analytical resources; and (4) reducing barriers to data access and use. Together, the contributions of OS-PCORTF projects across these four domains will enable PCOR researchers to address questions important to patients, caregivers, clinicians, and policymakers in a more robust and rigorous manner.
- Copyright:
- The National Library of Medicine believes this item to be in the public domain. (More information)
- Extent:
- 1 online resource (1 PDF file (21 pages))
- NLM Unique ID:
- 9918751182806676 (See catalog record)
- Permanent Link:
- http://resource.nlm.nih.gov/9918751182806676
