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Federal action is needed to improve race and ethnicity data in health programs
Federal action is needed to improve race and ethnicity data in health programs
The COVID-19 pandemic laid bare the inequities in health and health care in the U.S., but the lack of adequate data on race and ethnicity prevented an effective response. Urgent action is necessary to improve race and ethnicity data in federal health programs that serve millions of Americans. Such data are pivotal to providing access to care, mounting effective and timely responses to health crises, eliminating racial and ethnic disparities, and advancing health equity. This paper presents findings and recommendations based on an environmental scan of selected health programs and over 20 interviews with key informants representing federal, state, and local health agencies; commercial insurance plans; public and private health systems; and health information technology experts. Examination of federal and state health care and public health programs reveals an absence of complete, standardized, self-identified race and ethnicity data sufficient to monitor equity. Key actions the federal government can take now to improve race and ethnicity data--and, in so doing, advance health equity--are highlighted below.
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