Skip Navigation

Project Leadership: effecting change, one parent at a time

Series Title(s):
Report (Lucile Packard Foundation for Children's Health)
Author(s):
Gray, Allison, author
Duenas, Juno, author
Watson, Janice Daar, author
Contributor(s):
Family Voices of California, issuing body.
Lucile Packard Foundation for Children's Health, issuing body.
Publication:
Palo Alto, CA : Lucile Packard Foundation for Children's Health, June 2015
Language(s):
English
Format:
Text
Subject(s):
Chronic Disease
Disabled Children
Education, Nonprofessional
Health Services Needs and Demand
Leadership
Parents
Professional-Family Relations
Program Evaluation
Adolescent
Adolescent Health Services
Child
Child Health Services
Family
Patient Advocacy
Humans
California
United States
Genre(s):
Technical Report
Abstract:
Families of children and youth with special health care needs (CYSHCN) have had significant real-world experiences that could help make health care policies and administration more family-centered and culturally competent. However, many lack the training and experience to make their voices heard. Family Voices of California's (FVCA) Project Leadership was designed to increase the capacity of families to partner in the development and oversight of services, systems and programs upon which they and their children depend. Project Leadership features a comprehensive training curriculum, paired with mentoring and support, that prepares families to build partnerships with professionals and engage in public policy advocacy on behalf of CYSHCN. An independent evaluation found that program graduates from diverse backgrounds showed significant improvement in leadership skills and confidence in their ability to advocate. In the project's first two years, 79 family members of CYSHCN completed the training and began active participation on a variety of committees and planning bodies; they gave testimony at state and local hearings and had their stories featured in the media.
Copyright:
Reproduced with permission of the copyright holder. Further use of the material is subject to CC BY license. (More information)
Extent:
1 online resource (1 PDF file (17 pages))
Illustrations:
Illustrations
NLM Unique ID:
101666241 (See catalog record)
Series Title(s):
Report (Lucile Packard Foundation for Children's Health)
Author(s):
Gray, Allison, author
Duenas, Juno, author
Watson, Janice Daar, author
Contributor(s):
Family Voices of California, issuing body.
Lucile Packard Foundation for Children's Health, issuing body.
Publication:
Palo Alto, CA : Lucile Packard Foundation for Children's Health, June 2015
Language(s):
English
Format:
Text
Subject(s):
Chronic Disease
Disabled Children
Education, Nonprofessional
Health Services Needs and Demand
Leadership
Parents
Professional-Family Relations
Program Evaluation
Adolescent
Adolescent Health Services
Child
Child Health Services
Family
Patient Advocacy
Humans
California
United States
Genre(s):
Technical Report
Abstract:
Families of children and youth with special health care needs (CYSHCN) have had significant real-world experiences that could help make health care policies and administration more family-centered and culturally competent. However, many lack the training and experience to make their voices heard. Family Voices of California's (FVCA) Project Leadership was designed to increase the capacity of families to partner in the development and oversight of services, systems and programs upon which they and their children depend. Project Leadership features a comprehensive training curriculum, paired with mentoring and support, that prepares families to build partnerships with professionals and engage in public policy advocacy on behalf of CYSHCN. An independent evaluation found that program graduates from diverse backgrounds showed significant improvement in leadership skills and confidence in their ability to advocate. In the project's first two years, 79 family members of CYSHCN completed the training and began active participation on a variety of committees and planning bodies; they gave testimony at state and local hearings and had their stories featured in the media.
Copyright:
Reproduced with permission of the copyright holder. Further use of the material is subject to CC BY license. (More information)
Extent:
1 online resource (1 PDF file (17 pages))
Illustrations:
Illustrations
NLM Unique ID:
101666241 (See catalog record)