Reflections and responses: six models for understanding how families experience the system of care for children with special health care needs

Reflections and responses: six models for understanding how families experience the system of care for children with special health care needs

Collection:
Health Policy and Services Research
Series Title(s):
Report (Lucile Packard Foundation for Children's Health)
Author(s):
Hughes, Dana, author
Contributor(s):
Lucile Packard Foundation for Children's Health, issuing body.
Philip R. Lee Institute for Health Policy Studies issuing body.
Publication:
Palo Alto, CA : Lucile Packard Foundation for Children's Health, November 2014
Language(s):
English
Format:
Text
Subject(s):
Child Health Services -- supply & distribution
Chronic Disease
Family
Health Resources
Health Services Needs and Demand
Models, Theoretical
United States
Genre(s):
Technical Report
Abstract:
During the spring and summer of 2013, some 61 stakeholders--including 52 parents of children with special heath care needs and nine providers and policymakers--were systematically interviewed for their responses to and reflections on six ethnographic models produced for the Lucile Packard Foundation for Children's Health in 2009. Another 60 workshop participants at an academic meeting also provided input. The purpose of the models is to illustrate the experiences of patients and families as a means to support efforts to improve the system of care for children with special health care needs. The findings from this study strongly support the notion that the models have the potential to--if they haven't already--contribute to achieving better understandings of these experiences.
Copyright:
Reproduced with permission of the copyright holder. Further use of the material is subject to CC BY license. (More information)
Extent:
1 online resource (1 PDF file (35 pages))
Illustrations:
Illustrations
NLM Unique ID:
101666240 (See catalog record)
Permanent Link:
http://resource.nlm.nih.gov/101666240