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1. Considerations for building federal data capacity for patient-centered outcomes research related to intellectual and developmental disabilities

Author(s):

Dhopeshwarkar, Rina, author
Heaney-Huls, Krysta, author
Hovey, Lauren, author
Leaphart, Desirae, author
Dullabh, Prashila, author

Publication:

Washington, D.C. : Department of Health and Human Services, Office of the Assistant Secretary for Planning and Evaluation, September 22, 2021

Subject(s):

Data Collection
Developmental Disabilities
Intellectual Disability
Patient-Centered Care
Research Design
United States
United States. Department of Health and Human Services

2. Improving data infrastructure for patient-centered outcomes research for people with intellectual and developmental disabilities

Author(s):

Dhopeshwarkar, Rina, author
Rotondo, Christina, author
Jiménez, Frances, author
Ryan, Sofia, author
Karimi, Madjid, author
Plourde, Emma, author
Dullabh, Prashila, author

Publication:

Washington, D.C. : Department of Health and Human Services, Office of the Assistant Secretary for Planning and Evaluation, July 26, 2022

Subject(s):

Developmental Disabilities
Intellectual Disability
Patient-Centered Care
Routinely Collected Health Data
United States